Monday 25 May 2020

My scoliosis correction surgery story

Hello

I was born with kyphoscoliosis which is curvature of the spine side to side and front to back. It is a combination of kyphosis and scoliosis. From when I was young until I was 14 I had to wear a back brace to stop the curve getting worse. Sometimes I had to wear the brace all the time or just during the day or just during the night. When I was 14 I stopped growing and a doctor told me that the curve of my spine couldn't get any worse and asked me if I wanted to have the scoliosis correction surgery. I said no at the time because I didn't want it but I was asked again if I wanted it in 2018 and I said yes so I was given an information leaflet and was told I would be put on the waiting list.
Fast forward to March 2019 and I received a phone call to say that I was next on the list so a short while later I got a letter in the post with information about a pre operation assessment. At the pre operation assessment I got to talk to a nurse and the surgeon about any questions I had and they tried to give me a blood test but they couldn't get enough blood out because my veins aren't that good. I was then told to go  to a different department in the hospital and was taken into a room for a breathing test which involved me closing my lips tightly around a mouthpiece then inhaling fully, so my lungs were completely filled with air then exhaling as quickly and forcefully as I could to make sure I emptied my lungs fully.

Fast forward to 10th June 2019 and I was admitted to hospital to have the operation. My mum picked me up from my house and took me to the hospital and we went up to the ward the nurse told us to go to and waited, and waited, until my name was called. We were directed to a ward with lots of beds in it but were told we would only be in this room until they got my room ready. We sat on chairs in the room for hours until in the evening someone offered me a cup of soup for dinner but I didn't want it, another while passed and a nurse came and wanted to go over some paperwork with me. She noticed that I hadn't passed the breathing test so just so she could be 100 percent sure of what my lungs were like, she took me to the stairs and said for me to walk up them so the nurse, my mum and I walked up five flights of stairs!
Later a doctor came and offered me some toast and it was music to my ears. I was so hungry. Around 7pm I was finally taken to a room which was just for me and I got settled in and changed into my pyjamas and watched TV on my phone then my mum left to go back home. She had stayed with me for about 5 hours sitting in the hospital not doing anything.















I went to bed then in the morning my mum came back and then the surgeon came and talked to us more about the operation then I got prepped for the operation and was pushed on a stretcher into theater. I woke up that evening in the high dependancy ward and I remember seeing my mum then a while later, my dad but I was drifting in and out of sleep so much the memory is a bit hazey. I had really bad pins and needles in my leg when I woke up and a doctor came and made sure I was comfortable then later someone came with dinner for me and I had some but I threw up afterwards. The next day I was taken to a different ward and was there for a few days. On 15th June I had a video call with my sister on WhatsApp and I talked to her for a while but then after I hung up I threw up again. I was so sore and uncomfortable so they put me on higher pain medication. The next day I had to get a tube put up my nose and down into my stomach to try and get rid of an air packet then I was sent for an x-ray because they couldn't see down my throat but it went well and the doctor came back afterwards and confirmed that they were able to get rid of the air packet. I had a nap that afternoon then the next thing I know I woke up and was so sleepy and unenergetic then my stomach got so sore that I couldn't move it all of a sudden and I ended up screaming in pain. I was put on a nebuliser which is a piece of equipment used to change liquid medicine into a mist inhaled into the lungs to help me breathe easier. Every day I had blood pressure and heart rate checks. On 17th June my oxygen levels were low so they ran a few tests and x-rays but the results came back and it turned out I had pneumonia so I was moved to the high dependancy ward so I could get more oxygen. That evening a nurse came and washed my hair with shampoo and put conditioner in it and they had to trim some of my hair to get rid of some of the pieces of glue that were stuck in my  hair from the wires that were connected to my head to monitor me while doing the operation then the nurse plaited my hair! The next day I was given a Nasal cannula to help me to breathe. On 20th June I started having really bad diarrhoea. A nurse told me it was because they had put me on so many different antibiotics to help me pass stools because I hadn't done so since the operation. During my time in high dependency I didn't do much physio with the physiotherapists because I was on oxygen, I only moved from the bed to a chair a few times. On 21st June I was moved back to the other ward in the hospital where I was before. I started feeling a lot better and was doing more. I had physio each day to help me get my strength back. For the first few days I had to hold on to a physiotherapists arm on both my right and left side to walk then gradually I only needed to hold on to one arm on one side then I progressed onto walking on my own with a zimmer frame which I had for about a month after I was discharged from hospital. I was discharged from hospital on 26th June and I was so glad because I was getting a bit fed up with being in hospital. I was only meant to be in hospital for about a week but because I got pneumonia I had to stay in for longer.
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Friday 22 May 2020

Life in Lockdown: My Story

Hello

Where I live, Northern Ireland is currently in lockdown as per government instruction to prevent the coronavirus (Covid-19) pandemic spreading. Northern Ireland have been in lockdown since Monday 23rd March.
I have decided to make this blog post about what life in lockdown has been like for me to share my story and mainly to get my feelings out there.

Life in lockdown hasn't been easy.
I have been unemployed for 6 months now and during that time, before lockdown started, I spent most of my time watching Netflix (which I still do so you would think lockdown would be easy for me but it hasn't) or going to church or hanging out friends. I can no longer do any of these things because of the lockdown and I don't know when I will be able to do these things again. This has made a big impact on my mental health.

Before lockdown my weekly routine looked like this:
Thursday evening: get dressed, have dinner, be picked up or taken to church for bible study, do the bible study with my church family then come home.
Saturday: get dressed, have breakfast, be picked up by my mum and taken to my grans for lunch then go out shopping and to a cafe with them. Some Saturday nights I would go to church for a youth group too.
Sunday evening: get dressed, be picked up or taken to church, take part in the Sunday evening praise service, come home then have dinner.
Some Wednesdays I would go to church for a women's fellowship group too.
This has all been taken away from me due to the ongoing Coronavirus pandemic.

Now my weekly routine consists of watching Netflix or Disney plus, reading my book, doing wordsearches, listening to music and going on a walk most days.

I haven't seen my mum and grandparents since 22nd March and I miss them loads. The only people I have seen are my dad who I live with, my housing support worker and my friend who lives nearby who I sometimes go outside her house on my 1 government permitted walk per day and we would stay 2 metres apart following the government's social distancing guidelines.

Before lockdown, when I felt low or bored or to prevent me from feeling these things, I could go to my local shopping centre or cafe for some retail therapy but now I can only go to shops that are open (mainly just supermarkets) once a week for essentials only. I don't know when the shops and cafes will reopen so that I can go shopping more freely but for now I am grateful that I can go out once a week to do this even though it doesn't help my mood much.

When lockdown started I found several helpful posts on Instagram about how to cope with lockdown, most of them said to stay connected with friends and family, exercise, listen to music, take up a new hobby, limit social media usage.. I decided to follow these tips as much as possible and would tell my family and friends online to do the same. A couple of weeks passed and I realised I was so busy trying to follow these tips and keep busy and do different things each day that I realised that I wasn't simply just living. I decided to take action and take things easy but then I realised that I had gone back to what I was doing before, trying so hard to cope that I was actually putting so much pressure on myself just to cope.

This lockdown has made me feel so alone because I have had very limited social interaction. I've had depression and anxiety for 8 years now and they have both gotten worse due to this pandemic, most days I will feel so low and on edge. I started to struggle more than I did last week and started to lean on unhelpful coping behaviours. I am working closely with my counsellor to try and cope with these thoughts. I used to be able to see my counsellor in person but now my appointments are over the phone.

The bible study I went to at church is now done on zoom which has really helped because it means I get to see my church family even though it is by video call. The Sunday service is now streamed live on Youtube from the church with the pastor and worship team in the church when it's being streamed.

Lockdown restrictions are being eased gradually bur in the NI government's plan there are no dates so the dates are announced about a week in advance of the restriction being announced. There is still a lot of uncertainty around. I know it's going to be a while until the shops and cafes open so I am hoping for the NI government to ease the restrictions and let people visit their immediate family in different households. That's all I want right now. To be able to see my mum in her own home.

For now, I am trying to be hopeful and positive and cope the best I can and I hope whoever is reading this does too. I hope things return to some sort of normal soon.

If you are experiencing any of the issues I have mentioned in the post, there are helplines and websites out there that can help you.
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